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Friday, February 10, 2023

NICU Day 6 {Heaven on Earth, Lab Changes}

Day 6 was truly a day that Heaven came to earth. I got to hold a literal angel in my arms for the first time... our angel! 

Before I get into that incredible story, let me start from the beginning of the day... It started out a little rough. Remember when I mentioned previously that the routine head ultrasounds for babies born at her gestational age was at 5 days? Well she turned 5 days old on Christmas day. Since they had gotten that head ultrasound to ease my mind just 3 days earlier, they decided to wait and get the routine scan on the morning of the 26th. I didn't sleep that night, worrying about the results, even though she had a clear head ultrasound just 3 days prior. Anything could have happened in the last 3 days. I asked the nurse to let me know as soon as she had the results. She kept me updated via text throughout the night.

At 1:30 a.m. she let me know that they had gotten in to do cares and did her weight. She weighed 396 grams... 13.9 oz. She had lost weight as expected. I didn't panic at that point because the rest of her update was positive. She was stable on her oxygen and her blood gasses, most of her labs and other vital signs had remained stable. There was one change that did catch my attention and made me extremely nervous- a shift in her I:T ratio- which could mean one of two things;

1. Residual effects on Paige's bone marrow from my preeclampsia
2. Infection

I was so worried about the I:T ratio, that I didn't even notice that the nurse had texted back that Paige's head ultrasound had resulted and that it was all clear! I was elated, but in the back of my mind I couldn't stop thinking about that lab result. The Nurse reassured me that for the time being, they weren't super concerned about infection. Paige's temperature was normal and all other vital signs were looking great. I just couldn't shake the feeling of worry though.

When I got to the hospital the morning of December 26th, I was exhausted and in tears after worrying all night about her lab results. I asked the nurse if Paige's Doctor or Nurse Practitioner could come discuss the results with me. I explained my concerns and I asked them why they weren't digging a little more into why the I:T was shifted. I asked them why they weren't doing blood cultures or other tests to make sure she didn't have an infection. The nurse practitioner explained that when mom's have severe pre-eclampsia, the babies bone marrow production can be suppressed and as it's trying to catch up, the I:T can appear shifted. Even though I still felt deep down that something was wrong, I relented because well, I'm not the doctor or nurse practitioner and they obviously know more than me. If I could go back and fight it, I would do it in a heart beat. But more on that later.

Paige had been pretty stable that morning. So stable, in fact that they were talking about letting me hold her that evening! She had been under the bilirubin lights since the day she was born, and her levels had improved enough that they were able to turn those off. They also removed the arterial line going into her belly button. We couldn't hold her until that was removed because the line was in her umbilical artery, so we were so happy to have that out. 

I was terrified to hold her because I didn't want to hurt her, accidentally pull our her breathing tube, or take her out of the incubator and expose her to the cold air or any sicknesses floating around. But they reminded me that being close to her mom was the best thing for her. It could help her heal, improve her vital signs, and help her to feel more relaxed. So all that day I looked forward with so much anticipation to holding her that evening. I couldn't wait to have her back with me. I still wished so badly that she was still growing inside instead of going through what she was going through. 

The time finally came at about 8 o' clock that evening! Mike had taken the boys to a hot springs with my family, so I called him and told him to hurry down after they were done, so that he could be here when we took her out. 

When he arrived around 9 o' clock, the staff gathered into her room to help us get her out. It may seem pretty easy to get a 14 oz baby out of an incubator, but its no easy feat. They had to have 2 RT's and 2 RN's there to help us. In order to take her out, she needed to be wrapped in plastic to help preserve her body temperature, she also had to have a thermal hat on because babies loose most of their heat through their head. They had me pick her up while the RN's watched the IV lines, and and the RT's watch the breathing tube. They were also watching her vital signs to make sure she could handle the transfer. I remember picking her up and putting her on my chest and it literally felt like nothing was there, she was so teeny tiny. They pulled the reclining chair up to me and I slowly sat down, all the while holding her little body on my chest. The nurses and RT's helped get her and I situated into a comfortable position. They stuffed pillows under both arms and taped her tubes to my shoulders to hold them in place. Once we were settled and everyone left, I just cried. It felt so good to have my little girl back with me. All my worries disappeared and Mike and I just enjoyed the moment. I got to hold her for 3 hours and they were right, her oxygen sats improved and she relaxed more than she ever had. 

It took every thing I had to put her back and say goodbye for the night, but around midnight we had to get her back in. Babies that size need to be under humidity because of the fragility of their skin, so we were only able to hold her for 3 hours. I wanted more than ever to just keep her close. It was so hard to let her go. But I was so happy that I got to spend 3 hours holding our little girl and hopefully helping her feel safe, comforted and beyond loved. It's one of the most special memories I've ever had in my life.

NICU Day 5 {December 25th-Christmas Day}


The boys woke us up at 7a.m. on Christmas morning. I was absolutely exhausted and in an incredible amount of pain. I didn't want to take anything because I wanted to be able to drive down to the hospital later, so I toughed it out with ibuprofen. Once I was able to pump, get my pain under control and get myself out of bed, I made my way out to the living room so that we could open presents together.

I wanted to keep the morning as normal as possible for the boys because they were so excited. I tried to get a video of their reaction when they came down the hall like I always do, but the excitement just wasn't there for me. I felt like a piece of me was missing and I didn't want to celebrate. I wanted so badly for Paige to be back inside my tummy and it literally took every ounce of emotional strength that I had to not break down and cry.

I couldn't focus on opening presents and didn't really care about what was going on around me. I pretended to be excited so that the boys could enjoy the day, but I was dying inside. I remember it being difficult for me to lay there because I was so anxious. I was glued to my phone waiting for the next update from Paige's nurse. The anxiety was so emotionally draining. Not just that day, but for the next 30 days. On top of that I was in pain and physically exhausted as well.

After we finished opening gifts, the boys played and I attempted to get up to get myself dressed, but the exhaustion had caught up with me. I knew that I had to try to take care of myself so that I could be strong enough to be there for Paige and I knew that I wouldn't be in a good place mentally if I didn't sleep, so I attempted to nap. I felt okay sleeping for a bit after I received updates that Paige was stable.

At one point, they sent me a video. I opened it up and it was a video of her little left eye opening for the first time! I was SO excited! I jumped up at ran over to show Mike and the boys. To that point, her eye's had been fused, so for her eye to open on Christmas morning was the ultimate Christmas present. I couldn't wait to get down there to see it for myself!

At around 12:00 I was finally able to get myself ready to head down to the hospital. The boys were still busy playing. I wanted so badly to sit and watch them play with their toys, I just wanted Christmas to be normal... but it was anything but that. I was anxious and worried and I needed to be with Paige, but I felt like I needed to be with the boys too. The boys were always so sweet about me going to the hospital and didn't mind me leaving. They knew their baby sister needed someone there with her.

I drove down to the hospital and ran up to the NICU. I couldn't wait to see her and do her cares so that I could see her little eye open. When I arrived at her bedside, I got my update from the doctors and spent the morning holding her hand. As soon as it was time for cares, I had the nurse turn down the lights so that we had the best chance at seeing that perfect little eyeball. I gently woke her up, but being her stubborn self, she kept those eyes as tight as she could. I don't blame her one bit! After cares I sat by her side for the rest of the day and into the evening. 

My family was having Christmas dinner that night and I was feeling guilty for being away from my boys, so I headed over to my parents to eat real quick. Again, the anxiety was so overwhelming while I was away, I could barely function. After I finished eating, they begged me to sit down and open presents, but all I could think about was getting back to Paige. Opening gifts for her was like a literal punch in the gut and every gift was more painful than the next.. I was trying my hardest to stay positive, but knowing that there was a chance that she wouldn't ever get to wear the cute outfit or use the stuffed animal tore me apart. After we opened gifts, I sat down to pump before I headed out the door to go back to the hospital. 

Before I left the house, I had asked my dad, my brother Skylar and brother in law Jordan to come down to the hospital with us to help Mike give Paige a blessing. They willingly agreed and we all headed down. It was the first time they had gotten to see her and they were all amazed with her size and strength. They gathered around as I sat by her side and Mike gave our beautiful little girl the most peaceful blessing of rest and healing. After the blessing, we felt at peace. My dad and brother's stayed for a while and after they left, we spent the rest of the night quietly by Paige's side, talking to Paige's nurse. I was just so thankful that we made it through Christmas.